Staying The Course 

Guest Blog for I-ASC
By Ethan Nagy 

S2C, Spelling to Communicate, nonspeaking, nonspeakers, Autism, I-ASC, Speller, nonverbal, RPM,

My harried sensory system finds solace in food. In learning instructive supports and how to keep my healthy and hearty gut biomes aligned, a friend told me I must cut sugar from my diet. I am grieving the loss of my sweets. 

Only loss in my motor challenged mind means an obsessive garble of thoughts that devolves into loops about food. To get fixated on something so primal leaves me unusually reduced in my skills. This gives me quite the desire to keep to myself. For my family it means quite a lot more. It means lots more support to get me focused. It means a lot more stress around my eating. It means I find a comfort in eating that causes me to become aggressive and entirely like a caged animal. 

S2C, Spelling to Communicate, nonspeaking, nonspeakers, Autism, I-ASC, Speller, nonverbal, RPM,I feel traumatized around food to begin with; this is one trauma I haven’t conquered yet, although I have beaten quite a lot of those demons. People I trusted in giving me support managed to inflict more harm than good. Such is the experience of my people in the world of behavioral instruction. 

Finding myself constantly thinking about sweets is a side effect of withdrawal. It isn’t like I have sweets all the time. It is both a loop and symptomatic of yeast die off. But given the emotional aspect of it all, it leaves me having a hard time. 

I mean to discuss this in order to demonstrate the interconnectedness of all these systems: emotional, sensory, motor, and dietary. Be careful what you ingest, or what others make you ingest, in any system you have. The side effects are long term. 

S2C, Spelling to Communicate, nonspeaking, nonspeakers, Autism, I-ASC, Speller, nonverbal, RPM,

Life is too short not to be healthy of mind and body. My friend will help me see this through to the end. My family will help me establish myself on sturdier shores. I will continue to find new equilibrium.

Having supports and utilizing them is the difference between success and failure. Have a plan, stick to it, and stay the course. 

May the odds be ever in your favor.

 

S2C, Spelling to Communicate, nonspeaking, nonspeakers, Autism, I-ASC, Speller, nonverbal, RPM,Ethan Nagy lives in Oregon with his family and pets where he is currently working to complete his high school diploma. An avid foodie, Ethan also enjoys nature walks, exercising, and music. Although still missing his ice cream, Ethan continues in his pursuit of a full stomach, much to his parents’ chagrin.

 

 

The mission of I-ASC is to advance communication access for nonspeaking individuals globally through trainingeducationadvocacy and research I-ASC supports all forms of augmentative and alternative communication (AAC) with a focus on methods of spelling and typing. I-ASC currently offers Practitioner training in Spelling to Communicate (S2C)with the hope that other methods of AAC using spelling or typing will join our association

Posted By on Wednesday, January 20th, 2021 in Advocacy,Autism,Community,Families,Motor,Nonspeakers,S2C,Spelling to Communicate

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